The Hepatitis Delta International Network is coordinated by the HepNet Study-House of the German Liver Foundation and brings together scientists, clinicians and health care associated individuals from all over the world to discuss and cooperate on all topics related to hepatitis delta. Main focus of the network is the establishment of a common hepatitis delta registry.
The primary aim of the HDIN registry is to establish a large global data base of patients chronically infected with HDV to better define the course of hepatitis delta and response to antiviral therapy in the context of different HDV and HBV genotypes and diverse host genetic and environmental backgrounds. A structured eCRF optimized for hepatitis delta was implemented.
The Hepatitis Delta International Network is not a conventional register since it is not only meant to collect and manage patient information, but it also serves as source of information for both patients and physicians with the help of our specific “Patient Form”.
If you are interested in participating in the network and the registry, find here more information: